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Benjamin's Journey to Better Hearing

When 5-year-old Benjamin Hart starts kindergarten next fall, he鈥檒l be in a public elementary school in Salinas, California. While that may be unremarkable for most, for Benjamin it鈥檚 a reason to cheer. Benjamin鈥檚 road was bumpy until, as Benjamin鈥檚 mother, Kathryn says, 鈥渁 true-life heroine put Benjamin on the right track.鈥�

The journey started when Benjamin was 14 months old. Recalls Kathryn, 鈥淏enjamin only had four or five words in his vocabulary. I looked at the charts and he didn鈥檛 have all the sounds he should have had at that point and he wasn鈥檛 repeating after me.鈥�

Suspecting a hearing problem, Kathryn took Benjamin to the pediatrician, but he responded to her concerns by saying that every child develops differently. Another doctor suggested that Benjamin had a behavioral problem. But when Benjamin, now 2 years old, only had 10 words in his vocabulary, Kathryn wasn鈥檛 content with either explanation. She returned to the pediatrician鈥檚 office. During the visit, the doctor tried to give Benjamin a standard hearing test, but he wouldn鈥檛 respond.

The Path to Diagnosis and Transformation

Benjamin鈥檚 journey was just beginning. Now nearly 3, Benjamin was referred to an audiologist, who administered a behavioral test that was inconclusive. Again, the audiologist deemed Benjamin unresponsive and recommended an ABR (Auditory Brainstem Response) to test the integrity of Benjamin鈥檚 auditory system. Remembers Kathryn, 鈥淚t was so traumatic getting Benjamin to sleep鈥攚hich is required for the test. We were spent. After the test, the audiologist said that she didn鈥檛 see anything wrong, just a little fluid, and he should get tubes. But then she went one step further and said, 鈥業 think he鈥檚 autistic.鈥�

A referral to a pediatric neurologist confirmed the diagnosis of autism, resulting in a prescription for 3 months of speech therapy. If at the end of the 3 months, Benjamin wasn鈥檛 talking more, the doctor was going to put Benjamin on Prozac. But just when Kathryn felt she had hit bottom, things started to change. Benjamin was getting weekly speech therapy and his therapist began to doubt the diagnosis. 鈥淪he鈥檚 the first one who agreed that Benjamin couldn鈥檛 hear. She urged me to get his hearing retested,鈥� says Kathryn.

Back to the audiologist they went, and Benjamin underwent another ABR test. When the results came back inconclusive yet again, the audiologist suggested digital hearing aids. Kathryn finally lost her patience. 鈥淚 looked at him and said, 鈥極kay, you don鈥檛 know if he can hear or not, and you and the pediatric neurologist are convinced that he鈥檚 autistic. Why would I want to spend all that money on digital hearing aids when they may not help him at all?鈥欌�� Kathryn demanded a third test.

This time, she waited for the audiologist to call with the results. And she waited. After three weeks of calling she finally spoke to the doctor, who said he thought Benjamin had auditory neuropathy, a condition that can cause inconsistent responses to sound and delayed speech and language development. Says Kathryn, 鈥淎t this point, the doctor said that Benjamin鈥檚 problem was way out of his league. So he referred us to the听Audiology Service at Lucile Packard Children鈥檚 Hospital.鈥�

It was an event that would change the Harts鈥� lives. From their first meeting with听Dr. Jody Winzelberg, Benjamin responded like never before. 鈥淚 saw my son do something I had never seen before: he concentrated and paid attention for an entire hour. She had a kind of magic with him,鈥� recalls Kathryn.

Based on her initial tests and review of past records, Dr. Winzelberg knew Benjamin was probably not autistic and definitely did not have auditory neuropathy. He was mostly deaf in his left ear and had severe hearing loss in the low-to-mid pitches rising to only a mild loss in the very highest pitch tested in his right ear. 鈥淭he words he knew suddenly make sense. It was 鈥楽top It!鈥�, 鈥楴o!鈥�, and other danger things, all the high-pitched noises,鈥� says Kathryn. 鈥淒r. Winzelberg sent us home with loaner hearing aids and everything started to fall into place. Benjamin started responding more in speech therapy right away.鈥�

Two weeks later, at 4 years of age, Benjamin was fitted with custom earmolds for digital hearing aids and, at Dr. Winzelberg鈥檚 urging, enrolled in preschool at the School for the Deaf in Salinas. 鈥淲e鈥檙e so lucky, because it鈥檚 one of the best programs in the state, and it feeds into the mainstream elementary school,鈥� says Kathryn. 鈥淭hey are taking Benjamin into the kindergarten class two days a week to get acclimated, and he鈥檚 doing fine. He has about 500 words now.鈥�

Kathryn sees a complete change in Benjamin鈥檚 personality, not just in his speech, since getting the correct diagnosis. 鈥淭his was a child who did not want to be touched. Now, he鈥檚 very affectionate and wants to interact with other kids,鈥� says Kathryn. 鈥淚t鈥檚 amazing that he鈥檒l get to go to regular kindergarten next year, and he鈥檒l only be one year behind. Dr. Winzelberg is our heroine.鈥�

Learn More

• Pediatric Audiology Service